New Mobility: A Labor of Love - Beating Stress in Long-Term Care giving

Arkansas Spinal Cord Commission Fact Sheet #7 : Attendant Care Services

New Mobility: Attendant Forum - Aug, 2001

Caregiver Spouse  -  A first hand story from New Mobility magazine (Feb, 1998) that presents the issues of a spouse being a caregiver for the individual with SCI.

Today's Caregivers - For Caregivers, About Caregivers, By Caregivers

Caregivers for SCI  -  Discusses the effects of caregiver stress on the individuals with SCI as well as the caregiver, a self test for stress and tips for handling stress. Produced by the RRTC in Secondary Complications in SCI at the University of Alabama at Birmingham, Dept. of P M & R. 1998

Caregivers of Persons with Spinal Cord Injury: A Longitudinal Investigation  -  By J. Scott Richards, PhD and Richard M Shewchuk, PhD. Research Update Newsletter, September, 1996. Discusses the research on the impact of caregiving over the first year after a spinal cord injury. 4pp. Produced by the RRTC in Secondary Complications in SCI at the University of Alabama at Birmingham, Dept. of P M & R.

Caregivers: Taking Care of Yourself  -  This is a summary of a presentation given by J. Scott Richards, PhD at the 1995 SCI Research Update Conference for consumers with SCI and their families. Provides updates to information on SCI, from the Pushin' On Newsletter produced by the RRTC in Secondary Complications in SCI at the University of Alabama at Birmingham, Dept. of P M & R.

Caring Road Community - The online Community of family caregivers.

Center for Personal Assistance Services - The Center for Personal Assistance Services provides research, training, dissemination and technical assistance on issues of personal assistance services (PAS) in the United States:

Christopher Reeve Foundation

Enhancing Independence: A Personal Attendant Training Manual  -  The straightforward, no-nonsense descriptions, reflections, and instructions are grounded on the independent living philosophy and make Enhancing Independence a truly accessible manual. By focusing on consumer direction and autonomous living, this manual helps improve quality of life.

Family Adjustment to Spinal Cord Injury  -  This booklet addresses some of the concerns and experiences which the family of a person with SCI may experience. It focuses on some of the initial questions and concerns loved ones may have about the injury and feelings that families experience.

Family Caregiver Alliance - FCA is a public voice for caregivers.

Caregivers Resources - The National Caregivers Library is one of the most extensive online libraries for caregivers that exist today.

Hiring and Management of Personal Care Assistants for Individuals with SCI

Craig Hospital - Long-term Care Givers - For Better and For Worse

National Association for Home Care and Hospice  -  Clothing for the halo patient providing a universal fit, unisex design, casual quality product of cotton knit for easy care. Machine washable. Various colors of T-shirts, sweatshirts and white only tank tops. HaloWear offers fast service and guaranteed satisfaction.
HaloWear@aol.com
(602) 997-4663
Fax (602) 997-1028

National Family Caregivers Association (NFCA) -  NFCA is a nonprofit membership organization whose mission is to improve the overall quality of life of America's 18 million family caregivers, regardless of their relationship to the person needing care, or the specific illness or disability being dealt with.

Personal Care Assistants: Special People for Your Special Care  -  This booklet addresses some of the concerns and experiences which the family of a person with SCI may experience. It focuses on some of the initial questions and concerns loved ones may have about the injury and feelings that families experience.

Preventing Secondary Medical Complications  -  A Guide for Personal Assistants to People With Spinal Cord Injury. An easy-to-read booklet designed to help personal care assistants in working with the person with SCI in his/her daily routines. It gives the PCA instructions for giving proper health care assistance that can help prevent medical complications. Some of the topics: skin, bladder, and bowel care ... range of motion exercises ... respiratory care ... diet ... temperature control ... autonomic dysreflexia ... and heterotopic ossification. A daily schedule/checklist and glossary are provided. 25 pages. Illustrated. In Adobe Acrobat .pdf format. (Developed by the Medical Rehabilitation Research and Training Center in Prevention & Treatment of Secondary Complications of SCI at the University of Alabama in Birmingham.

Problem Solving Interventions for Caregivers and Persons with Spinal Cord Injury  -  An article from Pushin' On updating results of an ongoing study of the long-term effects of the relationship between persons with SCI and family caregivers.

SCIC : Spinal Cord Injury Caregivers  -  This is a forum for FAMILY MEMBERS who are Caregivers of Spinal Cord Injury Loved Ones. This forum is designed to share information and to support others. You must be a FAMILY and providing full time care.. This is not a list for those doing caregiving as a job or a career, or a person doing part time caregiving.

SCIC Helping Hands  -  This group SCIC Helping Hands is designed to help those who are interested in caring for a SCI person, or those who want to know about Spinal cord Injury.

SHARE THE CARE - is dedicated to educating the caregiving communities about the effectiveness of the Share The Care™ model, and making it more accessible throughout the country. It is focusing on its goal by teaching, presentations and networking by its Founder and President, Sheila Warnock and the Volunteer Directors of Outreach Support.

Spinal Cord Injury Information Network Caregivers for SCI - SCI InfoSheet #17

The Caregivers Advisory Panel - The Caregivers Advisory Panel, Inc. (TCAP) provides research on caregivers to health care manufacturers, caregiver support organizations, financial services providers, and other organizations interested in learning from caregivers. 

The Common Bonds of Caregiving  -  This article says the first common bond shared by caregivers is the emotional impact of caregiving.  The second common bond is the inner strength that most of us never knew we had. From the National Family Caregivers Association.

The Well Spouse Association  -  The Well Spouse Association is an international, non-profit membership organization which provides emotional support to wives, husbands and partners of the chronically ill and/or disabled. WSA offers support groups, round robin and mentor programs, on-line chat forum, respite weekends, national conference and a quarterly newsletter. Assistance given to start new support groups.