Caregiver Spouse -
A first hand story from New Mobility magazine (Feb, 1998) that
presents the issues of a spouse being a caregiver for the individual
with SCI.
Caregivers for SCI -
Discusses the effects of caregiver stress on the individuals with SCI as
well as the caregiver, a self test for stress and tips for handling
stress. Produced by the RRTC in Secondary Complications in SCI at the
University of Alabama at Birmingham, Dept. of P M & R. 1998
Caregivers of Persons with Spinal Cord Injury: A
Longitudinal Investigation - By J.
Scott Richards, PhD and Richard M Shewchuk, PhD. Research Update
Newsletter, September, 1996. Discusses the research on the impact of
caregiving over the first year after a spinal cord injury. 4pp. Produced
by the RRTC in Secondary Complications in SCI at the University of
Alabama at Birmingham, Dept. of P M & R.
Caregivers: Taking Care of Yourself
- This is a summary of a presentation given by J. Scott Richards,
PhD at the 1995 SCI Research Update Conference for consumers with SCI
and their families. Provides updates to information on SCI, from the
Pushin' On Newsletter produced by the RRTC in Secondary Complications in
SCI at the University of Alabama at Birmingham, Dept. of P M & R.
Caregiving
--
An article from New Mobility magazine for June, 2000. This article by Richard
Holicky discusses how caregiving is a most stressful occupation - and offers
potential problems & solutions for family caregivers
Caring from a Caregiver
Enhancing Independence: A Personal Attendant Training
Manual - The straightforward,
no-nonsense descriptions, reflections, and instructions are grounded on
the independent living philosophy and make Enhancing Independence a
truly accessible manual. By focusing on consumer direction and
autonomous living, this manual helps improve quality of life.
Family Adjustment to Spinal Cord Injury
- This booklet addresses some of the concerns and experiences
which the family of a person with SCI may experience. It focuses on some
of the initial questions and concerns loved ones may have about the
injury and feelings that families experience.
National
Association for Home Care and Hospice -
Clothing for the halo patient providing a universal fit, unisex design,
casual quality product of cotton knit for easy care. Machine washable.
Various colors of T-shirts, sweatshirts and white only tank tops.
HaloWear offers fast service and guaranteed satisfaction.
HaloWear@aol.com
(602) 997-4663
Fax (602) 997-1028
National Family Caregivers Association (NFCA)
- NFCA is a nonprofit membership organization whose mission is to
improve the overall quality of life of America's 18 million family
caregivers, regardless of their relationship to the person needing care,
or the specific illness or disability being dealt with. NFCA was started
to improve the quality of life for all caregivers by providing
information, educational materials, and advocacy for their cause.
Current services to members include: TAKE CARE! Self Care for the Family
Caregiver newsletter; Caregiver to Caregiver Support Network; Speakers
Bureau; Cards for Caregivers; a newly published book, The Resourceful
Caregiver, which is available in local bookstore or through NFCA; NFCA
Caregiver Member Survey Report; and National Family Caregivers Week
Celebrations in November.Contact NFCA for cost of membership.
Personal Care Assistants: Special People for Your Special
Care - This booklet addresses some
of the concerns and experiences which the family of a person with SCI
may experience. It focuses on some of the initial questions and concerns
loved ones may have about the injury and feelings that families
experience.
Preventing Secondary Medical Complications
- A Guide for Personal Assistants to People With Spinal Cord
Injury. An easy-to-read booklet designed to help personal care
assistants in working with the person with SCI in his/her daily
routines. It gives the PCA instructions for giving proper health care
assistance that can help prevent medical complications. Some of the
topics: skin, bladder, and bowel care ... range of motion exercises ...
respiratory care ... diet ... temperature control ... autonomic
dysreflexia ... and heterotopic ossification. A daily schedule/checklist
and glossary are provided. 25 pages. Illustrated. In Adobe Acrobat .pdf
format. (Developed by the Medical Rehabilitation Research and Training
Center in Prevention & Treatment of Secondary Complications of SCI at
the University of Alabama in Birmingham.
Project FOCUS - A
problem-solving training program for caregivers of patients with spinal
cord injury (SCI). We recognize that caregivers play an integral role in
assisting their loved ones. In this program, they are able to build on
tools that can help them reach their goals. Developed by: Tim Elliott,
PhD and Richard Shewchuk of the University of Alabama at Birmingham
Dept. of Physical Medicine and Rehabilitation Funded through a grant
with the Centers for Disease Control.
SCIC : Spinal Cord Injury Caregivers
- This is a forum for FAMILY MEMBERS who are Caregivers of Spinal
Cord Injury Loved Ones. This forum is designed to share information and
to support others. You must be a FAMILY and providing full time care..
This is not a list for those doing caregiving as a job or a career, or a
person doing part time caregiving.
SCIC Helping Hands -
This group SCIC Helping Hands is designed to help those who are
interested in caring for a SCI person, or those who want to know about
Spinal cord Injury.
The Common Bonds of Caregiving
- This article says the first common bond shared by caregivers is
the emotional impact of caregiving. The second common bond is the inner
strength that most of us never knew we had. From the National Family
Caregivers Association.
Care Givers Resource
